Fundraising policy

General Statement
The Rubinstein-Taybi Syndrome (RTSUK) Support Group applies any funds raised only for its charitable purposes. We welcome donations and other funding from individuals, companies, local and national government and other charities.

If we receive an offer of funding for work which has not been planned by the RTS support group, we will decide on whether the proposed work fits within our strategic direction. The Trustees will decide whether or not the funds can be accepted and how they will be used.

If funding has been agreed but for any reason subsequently cannot be used the funder will be notified.

Legal Issues
Where we have reason to believe that funding is the proceeds of crime or belongs to someone other than the donor, we will contact the police or other relevant authorities.

Gifts in kind
RTSUK support group welcomes gifts in kind which will assist us in our work.

Publicising support
We acknowledge our sources of funding publicly, for instance in our annual report, and identify major donors unless the donor wishes to remain anonymous.

RTSUK will enter into discussion with any potential funders who may wish to promote their support of the charity. RTSUK will assess whether there is a net benefit to the charity of accepting the support. The assessment will take into account:

  • Any publicity which may be negatively construed, or associates RTSUK with an organization who does not share our values; and
  • The benefit of such support to the beneficiaries of the charity’s activities
    We will seek to obtain such tax or other fiscal benefits as are permissible when receiving funding and shall advise potential donors of our willingness to receive donations under covenant or Gift Aid.

Rubinstein Taybi Support Group –
Fundraising Policy

Making Fundraising Applications
Applications to funders will be based on funding to support the group aims. These applications will be coordinated by the trustees and will not include any misleading or pity provoking stories but be based on the importance of providing support to families and raising awareness of RTS. The dignity of people with RTS and their families will always be respected.

RTSUK’s aims are:
• To offer support to families and caregivers of those affected by Rubinstein-Taybi Syndrome (RTS); and
• To help raise awareness of RTS amongst the medical community and the general population.
Fundraising Expenses
RTSUK acknowledges that with all fundraising there is a risk in achieving the fundraising goals.

As a charity we recognize that some fundraising requires up front registration fees by the fundraiser. When the fundraiser would like support with these up-front costs a request should be submitted to the Trustees. If approved, the charity will support up to £250 of initial fees to support the fundraiser on condition that registration is evidenced. Financial assistance with fundraising must be cleared with the committee before committing to costs.

If the fundraiser raises over the agreed amount the charity will then pay the remaining 50 % of the up-front costs, to reimburse the fundraiser.

Up-Front Costs are defined as a registration fee to be paid to register for an event, or an up-front investment to organise a fundraising event.

Definition of fundraising and donation
Fundraising is raising money on behalf of the charity or for the charity.
Fundraising may be undertaken by the Charity through:
• grant applications to public, corporate or charitable sources
• community fundraising – raffles, events etc.
• other opportunities that may arise from time to time

Donations are payments to the charity that may be made on a one-off or regular basis

Rubinstein Taybi Support Group –
Fundraising Policy

Limits of Delegated Authority

Trustee Level
All applications for funding must be approved by trustees. Where possible, this should take place at a formal meeting of trustees

Accepting Donations
Anonymous donations with a value of over £25,000 will be reported to the Charity Commission as a serious incident.

To agree acceptance of a donation the trustees will ideally meet in person and consider the following:

• The geographical location of the donation, with particular caution to countries wherein corruption is rife.
• Any costs related to accepting the donation
• Whether the donor’s business could be considered detrimental to the achievement of RTSUK’s aims
• Anonymous donations will be accepted when there are no obvious causes for concern
• Potentially unacceptable donors will be discussed in trustee meetings and further guidance will be sought if necessary from the Charity Commission or equivalent appropriate regulatory body.

Donations will be made to the secretary of the charity and therefore the secretary will flag up any unsolicited donations. All donations will be reviewed by Trustees as soon as possible in person or remotely.

Avoidance Criteria
This list gives reasons why financial support or partnerships will not be accepted. This is not an exhaustive list and trustees will make a reasonable judgement on each donation. Where donors are engaged in:

• The manufacture of tobacco
• The sale of pornography
• Specifically soliciting business from accident victims or their families

Rubinstein Taybi Support Group –
Fundraising Policy

Acceptance Criteria
When deciding whether to accept any particular donation the Trustees have a duty to demonstrate to the Charity Commission that they have acted in the best interest of the charity, and that association with any particular donor does not compromise RTSUK’s ethical position, harm its reputation or put future funding at risk. RTSUK complies with all relevant legislation including money laundering rules, the Bribery Act and Charity Commission guidance, including terrorism and political activity.

Therefore, RTSUK will not accept any of the following where the donation:

• Was known to be associated with criminal sources
• Would help further a donor’s personal objectives, which conflict with those of the RTS support group
• Would lead to a possible decline in support for the charity, and so risk a fall in the resources available to fund our work
• Would otherwise significantly damage our reputation

Legislation and regulation considered in this policy development
• The Charities Act 1992: in relation to commercial participators and professional fundraisers.
• The Charities Act 2011: in relation to seeking the views of the Charity Commission on whether to accept or refuse a particular donation, or an order to sanction the trustees’ dealings with charity property.
• Data Protection 1998: in relation to handling the personal data of any donors. • Freedom of Information Act 2000: in relation to freedom of information requests.
• The Bribery Act 2010: in relation to bribery offences.
• Finance Act 2011: in relation to tainted charity donations
• Proceeds of Crime Act 2002: in relation to suspected money laundering
• Terrorism Act 2000: in relation to disclosures of beliefs or suspicions of terrorism offences.
• The Charities and Trustee Investment (Scotland) Act 2005: in relation to the regulation in Scotland of commercial participators and professional fundraisers, and the broader duties of charity trustees in managing the charity’s affairs and finances.
• The Charities Act (NI) 2008

Rubinstein Taybi Support Group –
Fundraising Policy

Complaints about Fundraising
Complaints about the charity’s fundraising should initially be raised with the chair of the committee – contact details are provided at

Fundraising Terms and Conditions
Fundraisers will be supervised by trustees and are required to adhere to the following principals:
• All fundraisers must submit a proposal of their fundraising strategy to trustees to be approved.
• Production of a risk assessment, an agreement to comply with the RTS fundraising policy and compliance with data protection. If the fundraisers require some funding from the RTS support group to initiate their fundraising and cover costs, this is at the discretion of the trustees to accept and support these costs and will be considered

1) Depending of the nature of the costs and the amount
2) Depending on the current financial situation of the charity
3) The benefit of providing the costs to enable an overall higher fundraising amount

For fundraisers
We are very grateful that you have chosen to fundraise for the RTS support group as we could not carry on our vital work without your support. The tips below are intended to help you carry out your fundraising; please read them carefully before you start to fundraise.

1) You should display the applicable registered number of the RTS Support group: Registered Charity No. 1147765.
2) As an independent supporter (as opposed to an employee or paid fundraiser for the RTS support group) please note that should refer to your fundraising as being ‘in aid of’ (and not ‘on behalf of’) the RTS support group. This means you do not represent the charity.
3) In law, you will be a trustee of any funds raised and must ensure that all donations and sponsorship money from your event is paid to the RTSUK. You must inform potential donors if any amount or percentage of the funds you raise will not be paid to the charity.
You may need to carry out a health & safety risk assessment for your event and to ensure that all participants are fully briefed and adequately supervised.

Rubinstein Taybi Support Group –
Fundraising Policy

4) Depending on the nature of your event, you may need insurance to cover your liabilities.
5) You understand that if you do something that threatens or damages the name or reputation of the RTS Support Group we will ask you to stop fundraising immediately.
6) You may need a license for your activity or event e.g. a license from the local authority to collect funds on the street, in a public place or by going from house to house; a license under the Gambling Act for a raffle or lottery; or a license for the sale of alcohol / entertainment.
7) Depending on the nature of the activities at your event, you may need to account to HMRC in respect of VAT or income tax.
8) If you are collecting personal information from donors, remember that there are requirements under the Data Protection Act 1998 relating to how you deal with that information.
9) Please encourage eligible donors/sponsors to make gift aid declarations. This will make the most of your fundraising efforts by enabling us to recover basic rate tax on their donations.
10) Please note our preferred option for online giving sites is via our website
11) You may only use fundraising materials that you have a right to copy and use. You will need our written consent to reproduce the RTS Support Group name, acronym and lozenge logo (all registered trademarks) yourself, and to use certain RTS Support Group copyright materials.
12) We would like to receive photographs of your event – if you wish to share these with us, please email them to and we will use them to promote our work.
13) If you are under 18, your parent/guardian takes responsibility for you under these T&C (which you have shown them), please also ensure they are happy about what you’ve chosen to do.