Useful links
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Contact, the charity for families with disabled children, supporting families with the best possible guidance and information. https://www.contact.org.uk
UK Government benefits, including blue badge and much more - http://www.gov.uk/browse/disabilities
Advice, support and information across many disability issues - http://www.disabilityrightsuk.org
Autism information - https://www.wizcase.com/blog/internet-safety-guide-for-people-with-autism-spectrum-disorders/#8
Independent parental education support service - http://www.ipsea.org.uk
Advice and support service for all carers - http://www.carersuk.org
Support for siblings of disabled individuals - http://www.sibs.org.uk
Independent support across all areas including education, health and social care-specific to disabled children - http://www.cafamily.org.uk
Support for those with or caring for someone with a learning disability. Also provides advice on wills and trusts - http://www.mencap.org.uk
A service for advice specific to autism. Also a telephone helpline available - http://www.autism.org.uk
National organisation for those with a severe learning disability and associated behavioural issues - http://www.challengingbehaviour.org.uk
Provide grants for specific requests to children with a disability - http://www.familyfund.org.uk
An organisation providing support with bladder and bowel problems in children. Helpline available too - http://www.eric.org.uk
A not for profit organisation that finds and sells products that improve the lives of disabled children - http://www.fledglings.org.uk
Support and training provider to help with sleep issues in children - http://www.thechildrenssleepcharity.org.uk
The Essential Guide to Planning a Fundraising Event - https://www.sunshineevents.co.uk/planning-a-fundraising-event/
Cerebra website - http://w3.cerebra.org.uk
Cerebra Problem Solving Toolkit - http://w3.cerebra.org.uk/help-and-information/guides-for-parents/problem-solving-toolkit
Cerebra on Anxiety - http://w3.cerebra.org.uk/help-and-information/guides-for-parents/cerebra-anxiety-guide-guide-parents/
Cerebra on Challenging behaviour - http://w3.cerebra.org.uk/help-and-information/guides-for-parents/managing-challenging-behaviour-factsheet-2/
http://w3.cerebra.org.uk/help-and-information/guides-for-parents/
Cerebra on Sleep - https://www.cerebra.org.uk/help-and-information/sleep-service/
FIND website which has information on for rare genetic syndromes - http://www.findresources.co.uk/
RTS Growth Charts for boys and girls - http://www.rubinstein-taybi.org/html/male http://www.rubinstein-taybi.org/html/female
Unique Chromosome disorder guides have a lot of detailed genetic information:CREBBP: Chromosome 16p13.3 (guide available for RTS)EP300: Chromosome 22q13.2 (no guide currently available for RTS) https://www.rarechromo.org/disorder-guides?s=
Same but Different plus Rare Navigator service For more information, please contact us at:
[email protected] or call 01352 757007
Let us know if the above links stop working ([email protected]) and please remember that the RTS Support Group accepts no responsibility for the content or reliability of any external website nor does it endorse any views or products expressed therein; also the RTS Support Group is not responsible for the privacy practices of such sites.