Useful links

Highlight the link, right click and use the 'go to' option.

Contact, the charity for families with disabled children, supporting families with the best possible guidance and information. https://www.contact.org.uk

UK Government benefits, including blue badge and much more - http://www.gov.uk/browse/disabilities 

Advice, support and information across many disability issues - http://www.disabilityrightsuk.org

Autism information - https://www.wizcase.com/blog/internet-safety-guide-for-people-with-autism-spectrum-disorders/#8

Independent parental education support service - http://www.ipsea.org.uk

Advice and support service for all carers - http://www.carersuk.org

Support for siblings of disabled individuals - http://www.sibs.org.uk

Independent support across all areas including education, health and social care-specific to disabled children - http://www.cafamily.org.uk

Support for those with or caring for someone with a learning disability. Also provides advice on wills and trusts - http://www.mencap.org.uk

A service for advice specific to autism. Also a telephone helpline available - http://www.autism.org.uk

National organisation for those with a severe learning disability and associated behavioural issues - http://www.challengingbehaviour.org.uk

Provide grants for specific requests to children with a disability - http://www.familyfund.org.uk

An organisation providing support with bladder and bowel problems in children. Helpline available too - http://www.eric.org.uk

A not for profit organisation that finds and sells products that improve the lives of disabled children - http://www.fledglings.org.uk

Support and training provider to help with sleep issues in children - http://www.thechildrenssleepcharity.org.uk

The Essential Guide to Planning a Fundraising Event - https://www.sunshineevents.co.uk/planning-a-fundraising-event/

Cerebra website - http://w3.cerebra.org.uk

Cerebra Problem Solving Toolkit - http://w3.cerebra.org.uk/help-and-information/guides-for-parents/problem-solving-toolkit

Cerebra on Anxiety - http://w3.cerebra.org.uk/help-and-information/guides-for-parents/cerebra-anxiety-guide-guide-parents/

Cerebra on Challenging behaviour - http://w3.cerebra.org.uk/help-and-information/guides-for-parents/managing-challenging-behaviour-factsheet-2/    

http://w3.cerebra.org.uk/help-and-information/guides-for-parents/

Cerebra on Sleep - https://www.cerebra.org.uk/help-and-information/sleep-service/

FIND website which has information on for rare genetic syndromes - http://www.findresources.co.uk/

RTS Growth Charts for boys and girls - http://www.rubinstein-taybi.org/html/male http://www.rubinstein-taybi.org/html/female

Unique Chromosome disorder guides have a lot of detailed genetic information:CREBBP: Chromosome 16p13.3 (guide available for RTS)EP300: Chromosome 22q13.2 (no guide currently available for RTS)       https://www.rarechromo.org/disorder-guides?s=

Same but Different plus Rare Navigator service For more information, please contact us at:-  [email protected] or call 01352 757007

People with disabilities in business: - https://www.aabrs.com/business-resources-for-people-with-disabilities/ 

Let us know if the above links stop working ([email protected]) and please remember that the RTS Support Group accepts no responsibility for the content or reliability of any external website nor does it endorse any views or products expressed therein; also the RTS Support Group is not responsible for the privacy practices of such sites.