24th April 2021

Bringing you an afternoon of fun, discussion and expertise, we look forward to hosting you.

This will be fun and informative event with:

SINGING HANDS – Suzanne will introduce Makaton signing and take us through some rhymes, action songs and pop songs! All age groups are invited to join this session

Q&A SESSION WITH AMBA – Amba is 21 years old and was diagnosed with RTS at the age of 15. She is part of a charity called the Council for disabled children

DR MARK HAMILTON – Dr Hamilton is a consultant geneticist and will cover the history of RTS research, how genetic technologies have evolved and how useful research may develop in the future

24 April 2021. 2 – 4 pm BST (UK time)

During 2021, RTS events will be conducted via online video calls using Zoom. Places are limited – early booking is advised. Register now at the link below.

Register for online event

Join us for online events throughout this year – Save these dates. Keep checking back and we will post further details as speakers are confirmed

12 June

11 September

13 November

Family get-togethers

The Support Group organises periodic get-togethers, conferences and social events that provide families with an opportunity to share information, experiences and friendship.  

There are usually two events per year – generally in spring and winter.

Up to date information is a key aspect of the events, with speakers on a variety of topics and discussion groups giving families the chance to talk openly with others living with RTS.

The children also have the opportunity to have fun with entertainers, craft activities and maybe a visit from the Easter Bunny or Santa according to the time of year.

Some events offer the opportunity to take part in research projects that aim to understand the syndrome better and ultimately help parents and carers.

RTS Support Group members are encouraged to join in, catch up with old friends, meet new friends and benefit from the support on offer.

Our most recent event – Cadbury World

Our most recent event in September '19 welcomed over 50 people from 16 family groups to Cadbury World in the Midlands. The event was subsidised and lunch was provided. A good time was had by all and generous goodie bags were particularly popular

RTS Support Group Fundraising Events

The Support Group aims to organise two official fundraising events annually. The type of event may vary from year to year but recently have included a summer RTS Golf Day and a winter RTS Sportsman’s Dinner. 

Our current fundraising initiative is RTS Active, see the homepage for details of how to join in and donate or visit the JustGiving page at the button below. 

RTS Active Virgin Giving

If you have an idea for a social or fundraising event then please contact us at:

[email protected]

There are no events to display.
Copyright © Rubinstein–Taybi Syndrome Support Group 2021. All Rights Reserved. Rubinstein-Taybi Syndrome Support Group is registered in England and Wales under charity number 1147765 and company number 7866190 at 169 Watford Road, Croxley Green, Rickmansworth, England WD3 3ED. We use cookies to improve your experience using this website.
Log in | Powered by White Fuse