Donating & Supporting

Focus for 2021/2 – PhD student funding

The RTS Support Group will be co-funding a PhD student with Aston university to carry out research into mental health in RTS. The PhD student will start in Autumn 2022 and the student will be reaching out to families via our charity to carry out interviews and observation research with individuals with RTS and their families and support workers.

The RTS Support Group are working with Dr Jane Waite at Aston University in Birmingham to recruit a PhD student to carry out research into mental health in RTS. Dr Jane Waite, who will be supervising the student, completed her PhD in RTS in 2012 under the training of Prof Chris Oliver. Both Jane and Chris have provided advice and input at syndrome support days for many years. The PhD will focus on the following areas:

  • What does poor mental health look like in people with RTS?
  • What factors lead to the best mental health outcomes for people with RTS?
  • What factors (e.g. poor sleep, impulsivity, autism) lead to poorer mental health outcomes?
  • How do mental health difficulties (anxiety, low mood, irritability) interact with behaviours that challenge in RTS?
  • Differences between people with Type 1 and Type 2 RTS

The PhD student will be reaching out to families via our charity to carry out face to face activities with people with RTS and their families/support workers. The PhD student will be conducting research with people with RTS of all ages. If you are interested to take part, please contact us at info@rtsuk.org.uk.

How this benefits RTS families

The research will produce high-quality resources for families of people with RTS. This will include:

  • Practical advice about enhancing mental well-being.
  • Information about what increases or hinders mental well-being in people with RTS through their lives.

This information will be communicated to families via a range of interactive resources including infographics, parent guides, videos, personalised feedback reports and online content for the website Further Inform Neurogenetic Disorders – www.findresources.co.uk.

At the FIND website, you can locate information and videos about the Aston team’s previous RTS research, funded by Cerebra. This includes findings on repetitive behaviour, memory, impulsivity, social behaviour, autism characteristics and decision making. These resources are examples of how previous research has already advanced knowledge about the needs of people with RTS.

Several research papers will be published from the new PhD, and summaries of the findings will be distributed to over 100 NHS Trusts who are registered with the research team to receive news about RTS. The team will provide workshops, support sessions and talks about mental health and behaviour in RTS for families and professionals.

Support is vital and appreciated

We truly appreciate all the help and support we receive and we do our utmost best to ensure donations of all sizes are used to the maximum benefit of the RTS community.

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