The RTS Support Group is both a registered charity and company limited by guarantee. We run on a not-for-profit basis by a volunteer management committee of Trustees.

The charity is run and its activities funded almost entirely by fundraising and voluntary donations.

Aims

• To provide support to families and carers of people affected by RTS
• To raise awareness of RTS amongst the medical community
• To encourage and support research into the cause and effects of RTS

The RTS Support Group supports families by

• Providing information about RTS which is especially useful to families who have recently received a diagnosis
• Producing and distributing information on research, medical and policy developments
• Arranging social family get-togethers
• Organising larger scale conferences and learning and support events 
• Producing and updating this website and delivering regular email communication to registered contacts.

Skills, knowledge and experience

On the management committee, we have many collective years of experience of parenting children and young people with RTS up to and into adulthood.

We maintain close links with highly experienced geneticists including Dr Mark Hamilton and Dr Adam Shaw, who runs an RTS clinic at Guy’s Hospital in London. Professor Jane Waite and her team at the School of Psychology in the University of Birmingham, are regular attendees and speak at RTS events.

Contact is a UK-wide charity providing support, advice and information for families with disabled children.

The charity started in a small way with Barbara Baron keeping in touch with other families affected by RTS by phone and letter.

In 1986, several families got together, started producing a newsletter and arranging annual get-togethers.

Over the years, membership has grown, links have been made with medical and psychology professionals, and events have become larger and are well attended.